Traveling with Dysautonomia or POTS isn’t just about logistics—it’s a strategic endeavor to ensure comfort, manage symptoms, and overcome challenges most people don’t even realize exist. For me, it’s been a journey filled with lessons, some learned the hard way. Let me share my story and equip you with a comprehensive packing guide to make your travel smoother and less overwhelming.

A Personal Note: My Journey with Travel and Dysautonomia

I still remember the overwhelming anxiety before my flight, weighing my options. What would be worse—asking strangers to help me with a heavier carry-on or not packing enough emergency items like electrolytes, a change of clothes, or medications? I was traveling alone. Newly married, my husband—repeating what so many doctors had told us—believed my symptoms were “all in my head” and caused by stress. He thought I needed to push through it. Those same doctors had gaslighted me into doubting myself, and in my obedient nature, I did as I was told.

On our first trip together, I used a wheelchair. It made things easier logistically, but emotionally, it was draining. I was 30 years old and felt so self-conscious every time the wheelchair reached the airplane door, and I stood up to walk onboard. The stares from strangers burned into my memory. Once, I overheard a teenager tell his mom, “I want a wheelchair too; I’m lazy like that lady.” The sting of those words lingered.

By my fifth trip, I decided to stop using the wheelchair service. I wanted to appear “normal” and avoid judgment. But that decision turned out to be one of the most reckless things I’ve ever done while sick. I navigated the airport like a healthy traveler—dragging my carry-on, waiting in long lines, and pretending I was fine. Let me spare you the suspense: I fainted in a different boarding lounge than my flight was leaving from. I barely made it through security and almost missed my plane.

Looking back, I’ve since forgiven myself, my husband, and even the more than 20 doctors who didn’t understand my condition. They didn’t know better, and neither did I. But I’m writing this post for you—so you know your options, learn from my mistakes, and hopefully have a better journey than I did.

Packing for Success: Essentials and Pro Tips

Traveling with Dysautonomia or POTS requires meticulous preparation to stay hydrated, comfortable, and prepared for any challenges. Here’s a detailed guide to packing for success:

1. Compression Stockings (Up to the Hip)

Forget regular compression socks—they’re not strong enough. Opt for hip-high compression stockings with a compression level of 20-30 mmHg to improve circulation, reduce swelling, and prevent blood pooling during prolonged sitting. Trusted brands like Medi and Jobst offer reliable options.

2. Electrolytes and Hydration Essentials

Hydration is critical. Pack:

• Electrolyte Tablets or Powders: Portable options like Nuun or single-serving sachets are convenient.
• Himalayan Salt: Add a pinch to your water to enhance absorption and stabilize blood pressure.
• Coconut Water Powder: A natural electrolyte alternative without artificial additives.
• Coca-Cola for Emergencies: The combination of sugar, salt, and caffeine can be a lifesaver during moments of low blood pressure.

Pro Tip: Be mindful of TSA liquid restrictions for electrolyte solutions, especially for international travel.

3. Snacks for Stability

Skipping meals isn’t an option. Pack:

• Salty nuts (almonds, cashews, or pistachios).
• Low-sugar protein or granola bars.
• Freeze-dried fruits for potassium.
• Seed crackers for a nutritious crunch.
• Glucose tablets for quick energy during emergencies.

4. Supplements and Medications

Have the right medications and supplements on hand:

• Well-Organized Pill Container: Keep your supplements sorted with Wellhistic's Pill Container – simple, organized, and effortless.
• Stress-Relief Supplements: Stay calm and balanced with CALM, packed with Ashwagandha and Lemon Balm for stress support.
• Travel-Sized Pill Crusher or Splitter: For flexibility with tablets.
• Extra Medications: Pack enough for at least 2-3 extra days in case of delays.

Pro Tip: Always keep medications and supplements in your carry-on to avoid issues with lost luggage.

5. Lightweight Carry-On Hack

Choose a lightweight carry-on you can easily lift or maneuver. Once on the plane, it can double as a footrest to elevate your legs and stabilize blood pressure.

Pro Tip: Ensure the bag is light enough to lift into the overhead compartment with one hand.

6. Entertainment to Calm the Mind

Distractions are key during travel. Pack:

• Noise-Canceling Headphones: Reduce sensory overload.
• Guided Meditation Apps: Apps like Headspace, Calm or Insight Timer help ease anxiety.
• Audible Books or Podcasts: Engaging content to keep your mind occupied.
• Movies or TV Shows: Download your favorites for offline viewing.

7. Medical Documents and Tools

Be prepared with:

• Medical ID Bracelet: Inform first responders of your condition in emergencies.
• Doctor’s Note: A document detailing your condition, medications, and emergency protocols.
• TSA Medical Notification Card: Facilitates smoother security screening for medical supplies.
• Thermometer or Pulse Oximeter: Portable devices to monitor your vitals.

Pro Tip: For international travel, have your medical documents translated into the local language.

8. Stress Management Essentials

Pack items to reduce stress during travel:

• Aromatherapy Rollerballs: Lavender or peppermint oils provide quick relief.
• Travel-Sized Heat Wraps: Useful for managing discomfort during flights.

9. Pre-Travel Preparation

Set yourself up for success by:

• Hydrating Thoroughly: Start in the days leading up to your trip.
• Notifying Airlines: Arrange for special accommodations like wheelchair assistance or priority boarding.
• Packing Medical Liquids Separately: Place them in a clear plastic bag for TSA screening.

10. Dress Comfortably

Choose loose, breathable clothing to reduce swelling and discomfort. Compression-friendly travel pants or wrap-around sweaters that double as blankets are ideal.

Expedited Airport Security Programs

Navigating security can be easier with these programs:

• TSA PreCheck: Speeds up security screenings in the U.S. without removing shoes, belts, or liquids.
• Global Entry: Provides expedited customs clearance for international travelers entering the U.S. (available to U.S. citizens, residents, and citizens of select countries).
• CLEAR: Uses biometric data to streamline airport security.

Pro Tip: Many premium credit cards, like The Platinum Card® from American Express, offer credits for TSA PreCheck or Global Entry application fees.

Pro Packing Checklist for Your Carry-On

• Compression stockings (20-30 mmHg).
• Electrolytes (tablets, powders, or salt).
• Snacks (nuts, seed crackers, glucose tablets).
• Supplements and medications (organized in a pill container).
• Noise-canceling headphones and entertainment.
• Medical ID bracelet and documents.
• Lightweight carry-on bag.

Final Thoughts

Packing for Dysautonomia is about creating a sense of control and empowerment. With the right tools and preparation, you can navigate travel challenges confidently and focus on your journey. My hope is that these tips—and my story—help you travel with greater ease and dignity.

👉 Try the  Dysautonomia / POTS  Low Blood Pressure Morning Guide
👉 Check out  the 7-Day Dysautonomia & POTS Detox Diet

Traveling with Dysautonomia is unpredictable, but having the right support can make all the difference. For me, CALM and BOOST have become travel staples.

CALM helps me manage the waves of stress, grounding my nervous system when I need it most. Meanwhile, BOOST provides steady energy and the resilience I need to power through those demanding moments. Together, they’re the perfect duo—whether I’m prepping for a long flight or recovering after a hectic travel day.

👉 Discover CALM & BOOST: Your Travel Companions for Balance and Strength

Stay tuned for Part 2, where I’ll cover airport navigation and in-flight strategies for managing Dysautonomia!

Warmest regards,

to your INVISIBLE BATTLES & UNSEEN STRENGTH,
Carola Le-Wriedt
Founder, Wellhistic & The Holistic Detox

P.S.

TSA PreCheck - Transportation Security Administration

Navigating airport security can be streamlined by enrolling in expedited programs such as TSA PreCheck, Global Entry, and CLEAR. These programs offer various benefits to enhance your travel experience. Below are the details and direct links to apply:

1. TSA PreCheck

• Benefits: Expedited security screening at U.S. airports, allowing you to keep on shoes, belts, and light jackets, and leave laptops and compliant liquids in your bag.
• Eligibility: U.S. citizens and lawful permanent residents.
• Application Process:
  1. Apply Online: Complete a 5-minute online application.
  2. In-Person Appointment: Schedule a 10-minute appointment for fingerprinting and background check at an enrollment center.
• Cost: $78 for a five-year membership.
• Apply Here: TSA PreCheck Application

2. Global Entry

• Benefits: Expedited U.S. customs screening for international travelers entering the United States; includes TSA PreCheck benefits.
• Eligibility: U.S. citizens, U.S. lawful permanent residents, and citizens of select countries, including Mexico.
• Application Process:
  1. Create a TTP Account: Set up a Trusted Traveler Programs account.
  2. Complete the Application: Fill out the application and pay the non-refundable fee.
  3. Schedule an Interview: Upon conditional approval, attend an in-person interview at a Global Entry Enrollment Center.
• Cost: $120 non-refundable application fee for a five-year membership.
• Apply Here: Global Entry Application

3. CLEAR

• Benefits: Uses biometric data to expedite identity verification, allowing you to bypass the standard security lines at participating airports and venues.
• Eligibility: U.S. citizens and legal permanent residents 18 and older.
• Application Process:
  1. Enroll Online: Begin the enrollment process online.
  2. Complete Enrollment In-Person: Visit a CLEAR location to complete enrollment, including biometric data collection.
• Cost: $189 per year.
• Apply Here: CLEAR Enrollment

Pro Tip: Many premium credit cards, such as The Platinum Card® from American Express, offer statement credits for TSA PreCheck, Global Entry, or CLEAR application fees. Check your card's benefits to take advantage of these offers.

By enrolling in these programs, you can significantly reduce wait times and make your travel experience more comfortable and efficient.

Carola

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